Daily Update - Neurologist Visit

Well, I went to see my neurologist yesterday and I was pleasantly surprised.

He asked about my relief from the headaches, etc. and the said that he was going to increase my Verapamil to try to keep the headaches at bay. He also prescribed Imitrex (100mg) for when my migraines start and Frova to take if the migraine continues more than 1 hour.

He said that my migraine symptoms are typical and that treating them is tricky due to the Fibromyalgia, saying that the two (migraines and fibro) feed off of each other and exacerbate the issue.

He then gave me a shot of Phenergan and Nubain in the hip and I was good to go (since I was going straight home).  All this and I was in and out in 20 minutes and on time.

The shot that my neurologist gave me lasted for about 6 hours. I was headache and pain free during that time! It was like my body went on vacation and was totally OK. I wish that I could have that shot every day...lol

So here I am, with a small headache, but generally decent.

Daily update: Stuff and new stuff

I went back to work Tuesday. (Thank God Monday was a holiday).  I still have dizziness and a constant headache, but am pushing myself without trying to push too hard (I am well aware of the consequences). I've spoken with my boss and have arranged to work out of a location that is closer to home for me (8 miles, instead of 26 miles) at least until I see the neurologist.

All of my bloodwork came back normal and I still have an appointment with a neurologist this Monday.

Today is also a very weird day in that I am having weakness in my legs and hand tremors. I chocked it up to low blood sugar, however, I still have it after eating. I hope that this passes quickly and is not something new to add on to the heap of stuff that I've been experiencing. It's a very unusual feeling not being able to trust your hands or legs.

Dr. Berne’s Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia Symptom Checklist

The following was developed by a doctor to help people keep track of their symptoms as they go to their monthly doctor visits. By comparing this months list with the pevious one, you can track your progress and also alert your doctor off any new symptoms that may be affecting you.

This list was sent to my wife and I by another dear friend who also suffers from fibromyalgia. (We all have to stick together :) )

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Dr. Katrina Berne, a clinical psychologist and author who specializes in ME/CFS & FM, has developed a comprehensive symptom checklist she advises her patients to complete & take to their doctors. This form should be updated every few months to document your symptoms and your progress. It’s especially helpful in the disability application process.

Please indicate on a scale of 1 to 10 the severity and frequency of each symptom, with 10 being the most severe and frequent. Use the past two months as a general guide. If you do not have the symptom, leave the space blank. (Thanks to Dr. Berne for providing this list.)

DATE:

Fatigue, worsened by physical exertion or stress
Activity level decreased to less than 50% of pre-illness activity level
Recurrent flu-like illness
Sore throat
Hoarseness
Tender or swollen lymph nodes (glands), especially in neck & underarms
Shortness of breath with little or no exertion
Frequent sighing
Tremor or trembling
Severe nasal allergies (new or worsened)
Cough
Night sweats
Low-grade fevers
Feeling cold often
Feeling hot often
Cold extremities (hands and feet)
Low body temperature (below 97.6)
Low blood pressure (below 110/70)
Heart palpitations
Dryness of eyes and/or mouth
Increased thirst
Symptoms worsened by temperature changes
Symptoms worsened by air travel
Symptoms worsened by stress

PAIN

Headache
Tender points or trigger points
Muscle pain
Muscle twitching
Muscle weakness
Severe weakness of an arm or leg
Full or partial paralysis of an arm or leg
Joint pain
TMJ syndrome
Chest pain

EYES AND VISION

Eye pain
Changes in visual acuity (frequent changes in ability to see well)
Difficulty with accommodation (switching focus from one thing to another)
Blind spots in vision

SENSITIVITIES

Sensitivities to medications (unable to tolerate a “normal” dosage)
Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes,
hair sprays)
Sensitivities to foods
Alcohol intolerance
Alteration of taste, smell, and/or hearing

UROGENITAL

Frequent urination
Painful urination or bladder pain
Prostate pain
Impotence
Endometriosis
Worsening of premenstrual syndrome (PMS)
Decreased libido (sex drive)

GASTROINTESTINAL

Stomach ache; abdominal cramps
Nausea
Vomiting
Esophageal reflux (heartburn)
Frequent diarrhea
Frequent constipation
Bloating; intestinal gas
Decreased appetite
Increased appetite
Food cravings
Weight gain ( _ lbs)
Weight loss ( _ lbs)

GENERAL NEUROLOGICAL

Lightheadedness; feeling”spaced out”
Inability to think clearly (“brain fog”)
Seizures
Seizure-like episodes
Syncope (fainting) or blackouts
Sensation that you might faint
Vertigo or dizziness
Numbness or tingling sensations
Tinnitus (ringing in one or both ears)
Photophobia (sensitivity to light)
Noise intolerance

EQUILIBRIUM/PERCEPTION

Feeling spatially disoriented
Dysequilibrium (balance difficulty)
Staggering gait (clumsy walking; bumping into things)
Dropping things frequently
Difficulty judging distances (e.g. when driving; placing objects on surfaces)
“Not quite seeing” what you are looking at

SLEEP

Hypersomnia (excessive sleeping)
Sleep disturbance: unrefreshing or non-restorative sleep
Sleep disturbance: difficulty falling asleep
Sleep disturbance: difficulty staying asleep (frequent awakenings)
Sleep disturbance: vivid or disturbing dreams or nightmares
Altered sleep/wake schedule (alertness/energy best late at night)

COGNITIVE

Difficulty with simple calculations (e.g., balancing checkbook)
Word-finding difficulty
Saying the wrong word
Difficulty expressing ideas in words
Difficulty moving your mouth to speak
Slowed speech
Stuttering; stammering
Impaired ability to concentrate
Easily distracted during a task
Difficulty paying attention
Difficulty following a conversation when background noise is present
Losing your train of thought in the middle of a sentence
Difficulty putting tasks or things in proper sequence
Losing track in the middle of a task (remembering what to do next)
Difficulty with short-term memory
Difficulty with long-term memory
Forgetting how to do routine things
Difficulty understanding what you read
Switching left and right
Transposition (reversal) of numbers, words and/or letters when you speak
Transposition (reversal) of numbers, words and/or letters when you write
Difficulty remembering names of objects
Difficulty remembering names of people
Difficulty recognizing faces
Poor judgment
Difficulty making decision
Difficulty following simple written instructions
Difficulty following complicated written instructions
Difficulty following simple oral (spoken) instructions
Difficulty following complicated oral (spoken) instructions
Difficulty integrating information (putting ideas together to form a complete picture or concept)
Difficulty following directions while driving
Becoming lost in familiar locations when driving
Feeling too disoriented to drive

MOOD/EMOTIONS

Depressed mood
Suicidal thoughts
Suicide attempt(s)
Feeling worthless
Frequent crying
Feeling helpless and/or hopeless
Inability to enjoy previously enjoyed activities
Increased appetite
Decreased appetite
Anxiety or fear with no obvious cause
Panic attacks
Irritability; overreaction
Rage attacks: anger outbursts with little or no cause
Abrupt, unpredictable mood swings
Phobias (irrational fears)
Personality changes

OTHER

Rashes or sores
Eczema or psoriasis
Aphthous ulcers (canker sores)
Hair loss
Mitral valve prolapse
Cancer
Dental problems
Periodontal (gum) disease

© copyright 1999 and 2008 by Katrina H. Berne, Ph.D.,