Monday, July 19, 2010

One more hour

... is what I tell myself when the pain and fatigue sets in.

In one more hour, I'll be closer to lunch and rest.
In one more hour, I'll be closer to going home and making it through another work day.
In one more hour, I'll be home and hopefully able to rest from the long day.

These are the things that I have to tell myself. These are the things that help me get through the day. If you can focus on a short term goal like making it through an hour, it all seems easier to deal with. It's like that old joke, "How do you eat an elephant?" "One bite at a time." That is the way that I take the day, one hour at a time. It seems to be a manageable amount of time to deal with.

This is all not to say like there are some days when one hour away is too much. There are days when I can't get out of bed. There are more days with pain than pain free days. As a matter of fact, I no longer remember a day without pain, but in one more our, it'll be OK.

Tuesday, March 30, 2010

Long days and bad pains

I have been very tired lately. We've had some issues at work that have caused us to have to work 17 hour days.
Yesterday was REALLY bad. I had shooting pains in my legs from the top of my thighs to the soles of my feet. To be honest, there were times last night that I didn't think that I was going to make it home. I wanted to crawl into a corner somewhere and just sleep.

I also had a really bad burning pain in my right shoulder. On top of all that, I had a bad case of nausea as well as all over body aches and burning. Man, I feel really, really tired and sore. Did I mention that?... lol

I thank God that we finished on time today, so I got to leave and come home to rest. A bonus is that I get to take Thursday off due to comp time. The way that I currently feel, I wish that I had tomorrow off as well. Oh, well :(

Thursday, March 4, 2010

Has it been too long?

Well, it's been a log while since I've posted. I don't know why. I really want to post, it just never seems to happen.

In thinking about it being a while, I would like to pose a rhetorical question.

Has it been too long?

I mean, does it seem like its been so long that you've had fibro that people are tired of it?... maybe your wife or loved ones are tired of it.

Maybe when you were first diagnosed, there was a sense of hope, or at least a sense of understanding and now that had eroded away to nothing... almost like your not sick any more or people have grown so tired of it that they are just ignoring it now.

I think that happens to all of us.

Anyway, today is an OK day. Painwise, it's strong, but not overbearing, probably a 7. I am exhausted andyet have so much to do here.

Another update... I've started taking me Lyrica again. Last night, our youngest son told me that I was sleep walking. I got up to use the rest room and he was talking to me. I didn't answer, and went back to be and I don't remember it. It's kind of scary...