Friday, May 11, 2007

Today is Fibeomyalgia Awareness Day


This is cross-posted from my other blog.



Today, May 12, 2007 is National Fibromyalgia Awareness Day. Fibro-ma-what?!?! Fibromyalgia is a condition that affects a large number of people, including myself, but is not widely known or understood, even among the medical professionals.

Fibromyalgia or FMS is a chronic pain illness characterized by widespread musculoskeletal aches, pain, and stiffness, soft tissue tenderness, general fatigue, and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle, and hands, but any body part can be affected. Fibromyalgia patients experience a range of symptoms of varying intensities that wax and wane over time.

The symptoms of Fibromyalgia include:

Pain:
The pain of FM is profound, widespread and chronic. It knows no boundaries, migrating to all parts of the body and varying in intensity. FM pain has been described as deep muscular aching, throbbing, twitching, stabbing and shooting pain. Neurological complaints such as numbness, tingling and burning are often present and add to the discomfort of the patient. The severity of the pain and stiffness is often worse in the morning. Aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.

Fatigue:
In today's world many people complain of fatigue; however, the fatigue of FM is much more than being tired. It is an all-encompassing exhaustion that interferes with even the simplest daily activities. It feels like every drop of energy has been drained from the body, which at times can leave the patient with a limited ability to function both mentally and physically.

Sleep Problems:
Many fibromyalgia patients have an associated sleep disorder that prevents them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the stage 4 deep sleep of FM patients. During sleep, individuals with FM are constantly interrupted by bursts of awake-like brain activity, limiting the amount of time they spend in deep sleep.

Other Symptoms:
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud's Syndrome, neurological symptoms, and impaired coordination.

I once read an incredible analogy of what having Fibro means; it's called the Spoon Theory. Although it's written by a lady with Lupus, but the theory still appies to all fibro sufferers. It is worth a look at it.

Monday, May 7, 2007

Just an Update

Wow, I can't believe that it's been so long since my previous post. I really don't know what to say right now except that this is s short update. Today is a bad day, pain-wise. I have burning pain in my left thigh that's been unrelenting since 4:15 this morning. I cannot describe the intensity of it, but it's stong enough to overshadow most of my other pains yesterday.

I am also VERY exhausted and feel like I can fall asleep while sitting here. I really wish that I could just go to sleep right now. I pray that God gives me strength to make it through today and to help me make wise decisions.

It's odd that during the days between my posts, I seem to forget about this blog and don't post, when I should. I find it to be very theraputic to write down whatever is going through my brain at the time. Sometimes it's not much.. LOL

Well, I guess that's about it for now.

Thursday, March 15, 2007

Brain Zaps

I know that it sounds weird, but I've been having an "unusual" feeling in my head acompanied by dizziness and mild nausea. In looking through some of the withdrawal side effects of Cymbalta, I found one called "brain zaps" or "brain shocks". In looking it up, I discovered that that is probably what I am having. Any rapid movement of my eyes or head causes these "zaps".

Wikipedia says that,

The brain shiver effect appears to be almost unique to those antidepressant chemicals that have an extremely short half-life in the body; that is, they are quick to disappear completely. This attribute of abruptness leaves the brain a relatively short time to adapt to a major neurochemical change when the medication is stopped, and the symptoms may be caused by the brain's readjustment. There is no evidence that the shivers present any danger to the patient experiencing them.

Dizziness

Oh boy, I don't know where to start. Let's see... today is the 4th day since I've stopped taking Cymbalta. I started feeling dizzy yesterday afternoon. It lasted on into the night and is still with me today. I also feel tired, yet jittery.

Although my darling wife arranged for me to get some time for sleep yesterday, my fatigue is pretty strong today. what reaslly stinks is that today is my "meeting day" at work. I have four meetings scheduled for today and don't know how I'm going to NOT come across as "bored" during them. To make matters worse, the meetings are very unstructured; are backto-back, drag on forever and we have the most uncomfortable 1/2 back chairs in the office world.

Well, I guess I should run and grab some coffee before it all starts.

Wednesday, March 14, 2007

Hallucinating

I have been experiencing hypnagogic hallucinations. This is a dream-like state with auditory or visual hallucinations, while dozing off or falling asleep. I also seem to be falling asleep in the middle of conversations with my wife. I can't seem to help it and my wonderful wife thinks that I am being insensitive to what she is saying and what her needs are.

I am also in Day 2 of my withdrawal from Cymbalta. I currently feel lousy. I am in pain all over my body and am REALLY sleepy.

I've read that people who stop taking Cymbalta have weeks of withdrawals because it is such a powerful drug. I certainly hope that that is not the case.

Tuesday, March 13, 2007

Denied...

Well, I just spoke to my wife who was going to the county clerks office to pick up my disabled placard and she said that the clerk told her that we didn't have the right form. What?!?! That was the form from THEIR website. Needless to say, she didn't get the placard, but did pick up the correct form that she will be taking to the doctor for me when she goes for her appointment this Thursday.

By the way, in case you are wondering, the only difference between the 2 forms is that the newer one has one line moved to another area of the paper and that area now has a box around it. To me, this is rediculous...

Monday, March 12, 2007

Disabled Parking

Well, it's been a while since my previous post. I have been back to my doctor for med refills and had decided ahead of time to ask her for to sign for a disabled parking placard for me. She gladly did it. Now, at least, I'll be able to walk shorter distances to work, etc. I actually counted the steps that it takes to get from the building where I work to the CORNER of the parking lot, let alone the walk to the spot, and it is over 1/2 mile!

This placard will help in that I can at least park at the 1/2 mile marker... LOL